Family overwhelmed after club donates specialist equipment for Freddie

PUBLISHED: 14:17 25 May 2018 | UPDATED: 07:42 29 May 2018

Freddie on his swing.

Freddie on his swing.

Archant

A mum from Yatton is ‘overwhelmed’ at the generosity of a rugby club which has donated specialist equipment to help her son who suffers from a rare genetic condition.

Freddie and his brother Joseph enjoying the new hot tub.Freddie and his brother Joseph enjoying the new hot tub.

Members of Gordano Rugby Club, in Portbury, held a number of fundraising events to pay for a hot tub and swing for Freddie De Gennaro.

Nine-year-old Freddie suffers from mucolipidosis type three (ML3), which can affect his bones, joints and other organs, and he also has epilepsy, autism and attention-deficit hyperactivity disorder (ADHD).

ML3 is a rare and progressive metabolic disorder which involves the body’s ability to break down certain fats.

Symptoms include developmental delay, joint pain, thickened skin, heart valve abnormalities, and intellectual disabilities or learning problems.

Freddie is at constant risk of seizures and has the same developmental skills as a nine-month-old baby.

His mum Justine says the equipment has made a huge difference to Freddie and it has meant the family can now enjoy some quality time together.

She said: “We want to say a huge thank you to the club. The equipment is amazing for him. He comes home from school and lies on the cover until I take it off.

“We are absolutely over the moon because it’s Freddie’s new favourite thing.

“There aren’t many things we can do together, but this is something the whole family can enjoy together.

“Freddie just loves water. It’s made life a lot easier.”

Freddie’s older brother Joseph, aged 12, used to play for the rugby club and a number of Justine’s close friends are involved with the team.

They have been raising money for Freddie for two years and have also made him an honorary member of the under 10s team.

Thanks to their fundraising efforts, the club has paid for Freddie’s family to go on holiday and members also bought him an epilepsy monitor so his parents can see him when he is in other parts of the house.

More: Friends’ fundraising for ‘loving’ Freddie.

This year they held bucket collections and organised a fun day to raise money for a hot tub and swing for Freddie.

Justine said: “The players and coaches are overwhelmingly generous. We are so grateful to them. They were very thoughtful to include him.”

More from Weston Mercury

Yesterday, 19:41

Police have cordoned off Worle Railway Station for an ongoing police incident this evening (Thursday).

Read more
Yesterday, 20:00

Fans of Abba and Grease can enjoy two hours of their greatest hits at The Playhouse on November 29.

Read more
The Playhouse Weston-super-Mare
Yesterday, 16:57

Life satisfaction and happiness levels have dropped in North Somerset in the past year, according to research from the Office for National Statistics.

Read more
Yesterday, 16:06

A ‘spectacular’ firework display will take place on Marine Parade on Saturday.

Read more
Yesterday, 14:14

Avon and Somerset Constabulary has reassured people a teenager did not die in Worle last night (Wednesday) after rumours circulated on social media.

Read more
Yesterday, 13:04

Weston-super-Mare’s first balloon launch and ‘night glow’ which was due to take place on Saturday, has been postponed due to poor weather conditions.

Read more
Yesterday, 12:27

Future bids for fracking to take place across North Somerset should be decided by the authority and not the Government, according to councillors.

Read more
Yesterday, 09:37

A woman has been injured after colliding with a car in Weston this morning (Thursday).

Read more
Yesterday, 08:58

A Priory Community School (PCSA) teacher has been cooking up tasty treats on a national cooking television programme.

Read more
Yesterday, 07:56

An accident involving two cars in Worle has resulted in slow moving traffic this morning (Thursday).

Read more

Most Read News

Read Online

Image
Read the Weston Worle and Somerset Mercury e-edition E-edition

Local Weather

Overcast

Overcast

max temp: 14°C

min temp: 8°C

Useful Links

Advertise in the paper
Submit a Story
Subscribe to the paper
Competitions
Send Your Letters
Order Photos
Family notices
iwitness24
Facebook
Twitter
Reader Travel

Family Notices 24

Newsletter Sign Up

Weston Mercury twice-weekly newsletter
Sign up to receive our regular email newsletter

Our Privacy Policy

Show Job Lists