Sponsored walk in aid of life-changing op for Rosie-May

PUBLISHED: 12:00 15 May 2018

Rosie-May, who has cerebral palsy, with her parents Josie Edwards and Simon Hughes want to raise £100,000 to take her to America for an operation.

Rosie-May, who has cerebral palsy, with her parents Josie Edwards and Simon Hughes want to raise £100,000 to take her to America for an operation.


The parents of a three-year-old girl with cerebral palsy are holding a sponsored walk to raise money for life-changing surgery for the toddler.

Rosie-May Edwards, from Weston-super-Mare, can stand up with support, but she cannot walk due to her condition.

Her parents Josie Edwards and Simon Hughes are trying to raise £100,000 to take Rosie to America for a specialist operation which could help her to walk and be pain-free.

Selective dorsal rhizotomy (SDR) surgery would transform Rosie’s life as it reduces lower limb spasticity – which can impair walking and sitting and causes discomfort, cramps and spasms.

Her parents are hoping to take her to America for the procedure, as it is not available on the NHS, and they are trying to raise thousands of pounds to pay for the trip.

Their first fundraising event is a sponsored walk from Birnbeck Pier to the end of the seafront.

The walk is taking place on Sunday at 10am and people are invited to take part or sponsor the event.

In a previous interview with the Mercury, Josie said: “Having cerebral palsy is a day-to-day struggle for Rosie as she finds it difficult to do a lot of things independently.

“Rosie really enjoys standing with support and she always wants to try new things but she becomes very frustrated and upset when her body just can’t do it.

“Rosie loves watching other children run around and she’s starting to realise she can’t because she’s different – it’s very upsetting for her.

“We are doing everything we can to try to make this possible for her and her future.”

Josie and Simon want to take Rosie to St Louis Children’s Hospital and the money they are trying to raise would pay for medical equipment, a year’s worth of physiotherapy and flights and accommodation for the family to stay in America for three weeks while Rosie recovers.

Josie added: “We are hoping this operation will allow her to finally take some independent steps of her own and help her to be able to find new ways to move around and be independent.”

To take part in the walk, email josie1997rosie@gmail.com or to donate to the appeal visit www.just4children.org/children-helped2018/rosie-mays-first-steps

More from Weston Mercury

The Cases Somerset Rebels management will be holding a fans forum at the Oaktree Arena to explain their decision to revert to the championship.

Read more
59 minutes ago

Five pubs in Weston have been recognised for their excellent real ale selection by being included in the Campaign for Real Ale’s (CAMRA) 2019 Good Beer Guide.

Read more

Hornets defeated Midsomer Norton in a high-scoring Somerset Cup quarter-final tie.

Read more

Weston were knocked out of the Somerset Cup in the first round by the students of Bath University.

Read more

Hornettes Ladies returned from Bath with a loss in their latest league match.

Read more

For those willing to brave the cold, there is no shortage of outdoor events taking place this weekend.

Read more

A long-awaited parking review has begun to try to address the problems in Weston town centre.

Read more
North Somerset Council Weston-super-Mare

Model railway enthusiasts gathered in Highbridge to spend the day indulging their passion.

Read more

Cheddar’s match against Warminster Town last Saturday was called off due to the playing surface being waterlogged.

Read more

Worle were held to a draw by Nailsea & Tickenham in their latest league encounter.

Read more

Most Read News

Read Online

Read the Weston Worle and Somerset Mercury e-edition E-edition

Local Weather



max temp: 14°C

min temp: 9°C

Useful Links

Advertise in the paper
Submit a Story
Subscribe to the paper
Send Your Letters
Order Photos
Family notices
Reader Travel

Family Notices 24

Newsletter Sign Up

Weston Mercury twice-weekly newsletter
Sign up to receive our regular email newsletter

Our Privacy Policy

Show Job Lists