Weston-super-Mare support group launched for people living with ‘disabling’ condition

PUBLISHED: 12:00 08 February 2018

Steve Mellor

Steve Mellor

Contributed

A Weston-super-Mare man has launched a support group for people suffering from a ‘disabling’ medical condition.

Steve Mellor, aged 30, was diagnosed with myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS) last year.

The condition causes extreme tiredness and Steve admits there are days when his symptoms are so severe he can’t even get out of bed.

Steve told the Mercury: “The condition affects me every day. Some days are a lot worse when I can’t even leave the bed, to good days when I go out and about.

“The condition is disabling and I use a mobility scooter outside. I try to get out and about as much as I can.

“For six years I have been to see different specialists. I even stayed in hospital for two weeks when they sat down with me and told me I have a function condition which is where I couldn’t show my emotions and it came out to attack me in a neurological way.

“I believed I had this condition for the whole six years.

“It took until I changed my doctor when I questioned what it was as I didn’t fully understand it.”

It was at this point Steve was diagnosed, but for years previous he faced disbelief, and was told by a number of different people he was imagining his symptoms.

He then began looking for a support group to help him come to terms with the condition, but after finding no such help decided instead to start his own service to help others too.

Steve added: “When I got diagnosed I was looking round for support groups or organisations in Weston so I can join, but unfortunately there is nothing.

“So with that I decided there and then I would do one myself.

“The group will offer localised support and advice as well as leaflets from other organisations across the UK that are sending my flyers, magazines and leaflets so people can take them home if they wish.

“The support group is called ME/CFS Support Group Weston-super-Mare and anyone from the area or surrounding areas can come along.”

The group will meet on the last Monday of every month, starting on February 26, from 1.30-3.30pm at the Substation in St Andrews Parade.

For more information, email help.me.wsm@gmail.com

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