Dad's praise for trust

THE parents of a little girl who cannot walk, talk, or breathe alone, are appealing for people to come forward and help families like theirs

THE parents of a little girl who cannot walk, talk, or breathe alone, are appealing for people to come forward and help families like theirs.Naomi Fuller, aged 10, has a chromosome disorder which kills 95 per cent of children before their first birthday.Because Naomi is confined to a wheelchair and has a tube in her throat to help her breathe, the Baytree Special School pupil has to have 24-hour care at the home she shares in Oxford Street, Weston, with her parents Paul and Ruth, and her six-year-old brother Oliver.For eight years of Naomi's life, Paul and 33-year-old teaching assistant Ruth, have been supported by the Jessie May Trust.This week the charity, which provides specialist respite care in children's homes, launched the Precious Time Appeal to raise £1.4million by the end of 2008. Naomi's dad Paul told the Weston & Somerset Mercury how important it is for people to come forward and help the charity's latest campaign.The 44-year-old furniture maker said: "Because of Naomi's problems she cannot be left alone at all. We take care of her but if we want to go out a Jessie May nurse will come in and look after her for a few hours."This means we can lead more of a normal life. We can do things like go to our son's PTA meeting or do the weekly shopping."Anyone who can help raise money for the Precious Time Appeal can call 01179 616840 or log onto info@jessiemaytrust.org.uk* Pictured: Ruth and Paul with Naomi and Oliver.


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