Sponsored walk in aid of life-changing op for Rosie-May
PUBLISHED: 12:00 15 May 2018
The parents of a three-year-old girl with cerebral palsy are holding a sponsored walk to raise money for life-changing surgery for the toddler.
Rosie-May Edwards, from Weston-super-Mare, can stand up with support, but she cannot walk due to her condition.
Her parents Josie Edwards and Simon Hughes are trying to raise £100,000 to take Rosie to America for a specialist operation which could help her to walk and be pain-free.
Selective dorsal rhizotomy (SDR) surgery would transform Rosie’s life as it reduces lower limb spasticity – which can impair walking and sitting and causes discomfort, cramps and spasms.
Her parents are hoping to take her to America for the procedure, as it is not available on the NHS, and they are trying to raise thousands of pounds to pay for the trip.
Their first fundraising event is a sponsored walk from Birnbeck Pier to the end of the seafront.
The walk is taking place on Sunday at 10am and people are invited to take part or sponsor the event.
In a previous interview with the Mercury, Josie said: “Having cerebral palsy is a day-to-day struggle for Rosie as she finds it difficult to do a lot of things independently.
“Rosie really enjoys standing with support and she always wants to try new things but she becomes very frustrated and upset when her body just can’t do it.
“Rosie loves watching other children run around and she’s starting to realise she can’t because she’s different – it’s very upsetting for her.
“We are doing everything we can to try to make this possible for her and her future.”
Josie and Simon want to take Rosie to St Louis Children’s Hospital and the money they are trying to raise would pay for medical equipment, a year’s worth of physiotherapy and flights and accommodation for the family to stay in America for three weeks while Rosie recovers.
Josie added: “We are hoping this operation will allow her to finally take some independent steps of her own and help her to be able to find new ways to move around and be independent.”
To take part in the walk, email firstname.lastname@example.org or to donate to the appeal visit www.just4children.org/children-helped2018/rosie-mays-first-steps