Weston College students walk for toddler
PUBLISHED: 11:54 03 July 2011
CARING Weston College students walked from the town to Sand Bay and raised about £600 for a very special two-year-old.
Paige Nicolas, aged 17, and 25 of her classmates studying the BTEC first diploma in children’s care, learning and development, organised the event for toddler Ethan Moss.
Ethan is one of only 500 children with the extremely rare condition called lymphangiomatosis.
This can cause benign tumours to grow in the lymphatic system which can invade body tissue and interfere with organ function causing extreme pain.
Paige said: “I met Ethan’s dad, Nick, in town trying to raise awareness about his son’s condition and felt determined to help him, so I told my friends and they felt the same.”
Very little is known about Ethan’s rare condition and there has been no formal research which is why parents, Nick and Kelly, want to fly him out to world experts in Ohio, America.
Nick, aged 38, of Winscombe, said: “We need to raise more than £70,000 and we are very grateful for the support from Weston College students.
“There are some experimental treatments available in the US which you can’t get here.”
On July 24 Nick is setting out on a gruelling 42-day, 1,500-mile military-style march from Land’s End to Inverness.
Then he will cross the country to Aberdeen and walk back down to the West Country by September 4, living on army rations and sleeping under the stars.
To find out more about ways to help Ethan visit http://walkforlymphangiomatosis.webeden.co.uk